Fighting to get answers, any answers. Or why I am a Genetic Freak.

I left off after being told I need to immediately call my OB/GYN. I call his office and his nurse has no clue what's going on. I was drugged up and frustrated. I said "I want to know what the MRI says, I want to know why ER Doc said I wasn't formed correctly" She says "well we don't have any MRI for you, did you have one done?"



I wanted to throw the phone. I explain to her that I had one done the week prior, and no one called me about it. Again, she tells me that they don't have the results on my chart, and I need to schedule a follow up with the doctor. No shit. I already had another appointment the following week, so I asked if that could just be my appointment and follow up all in one. "Sure" she says. Then she tells me to call them on Monday (this was a friday) to find about the MRI.

I call them and am told that per the doctor NO ONE is discuss the MRI with me, and I am to wait for him to talk to me about it at my appointment. Immediately the worst scenarios are running through my head. "Do I have cancer?" "Am I infertile?" "Am I dying?" and I have a WHOLE WEEK OF THIS to live with.



One week later we get to the doctor, and he gets ready to do my exam (I have a problem with dysplasia every now and then, so this was supposed to be a follow up PAP for one 3 months earlier). He says "so, any questions?"



I just stared at him. I said "Do you have ANY notes at all about me being in the ER last week, and asking about my MRI?"

He leaves the room, and comes back in and apologizes. He said his staff neglected to update my chart after I called the last week. He also didn't have any notes saying that he told me I wasn't to discuss the MRI with anyone other than him.



Here's where it gets interesting.



He tells me that the "mass" in my uterus, is not just a mass. It's a whole OTHER uterus. He says this is not a cancer, it's not life threatening, and it's likely the cause of my pain and discomfort. Uterus didelphys, I guess is the term for it. He says that he sees a case like mine, maybe once every 3 yrs. He said my "abnormality" goes beyond the reach of his experience and he needs to refer to me to an Oncological Gynecologist. The closest one is 2 hrs away. I asked him if I was going to be able to have babies someday. (I'm 33--make that someday SOON). He said "I don't see why not".



So, let's recap.



1) I'm not dying, yay!

2) I should be able to have babies.

3) I have to go to Pittsburgh to see a specialist.